Hi All, sorry I've been absent but I've been sick for the past few days. Here is a summary of the info I recieved from Ashleigh:
- Ning is a website that allows you to create your own social website (similar idea to facebook and it is user friendly for patients familiar with Facebook platform). Pricing & info here: http://about.ning.com/plans/
o The group on Twitter agreed that it would be a good resource to look into.
- What about BBS (BulletinBoard Systems)? This technology isn’t “new” but it has been proven to work in this capacity.
o This stands for Bulletin Board System (http://en.wikipedia.org/wiki/Bulletin_board_system)
o Search for “open source” BBS systems as these will be free.
o There was discussion about whether or not you would need the forum to be moderated by an “expert”
§ Some said yes but others said that it can be led based on patient involvement/input.
§ Some moderation is important to ensure “trolls” are kept out. (Here is the description of a troll: http://en.wikipedia.org/wiki/Troll_%28Internet%29)
- Check out a group online called: http://www.tudiabetes.org/ which is very active using twitter
- www.caringvoices..ca is an online community for cancer survivors- hosted through PMH
- Other suggested sites to look at:
- A Special Interest Group SIG or electronic Community of Practice (eCoP) could: http://www.ewenger.com/theory/
o Set up an email based e-network for sharing news, ideas, tools, relevant literature, asking for help and feedback on project ideas and other documents such as organizational policies.
o Organize online events such as Webinars and Twitter chats
o Share a group blog to share ideas.
o Share contact details and interests so people could make contact with each other for small group professional conversations using e-media and perhaps Skype.
o Organize face to face events and meet-up perhaps in conjunction with significant Public Health and Health Promotion conferences.
o Develop position and discussion papers on key issues.
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- Igloo is a Canadian social network that typically charges but also allows free access for not for profit agencies (http://www.igloosoftware.com/free) the barriers to this are that you can only have up to 25 users in this account. If you want more than 25 people, the pricing increases tremendously.
- Wall.fm is another FREE social networking site creator http://wall.fm
- This website gives a list of different free social networking software: http://www.vivalogo.com/vl-resources/open-source-social-networking-software.htm
- Skype could be used if you want video or audio features.
That's all I have for now, Jessica :)
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